Navigating this journey has become increasingly challenging, as Heather’s perception of the world undergoes frequent shifts. Despite facing numerous tough times, evenings when I prepare her for bed stand out as particularly difficult, often filled with confusion, tears, and resistance.
My current objectives resemble those of palliative care; while I can’t fix everything, I strive to ensure she remains well-fed with plenty of treats and her favorite foods, clean, comfortable, and most importantly, I aim to bring joy into her life by making her laugh. I’ll often tell my digital device “Hey Google play some happy dance music” and I’ll take her hand in the kitchen and get her moving.
Heather has always approached life pragmatically; in tough times, she would often ask, “did anyone die?” before seeking out the most practical and positive way forward.
A recent visit to the drive-through at Dairy Queen for a chocolate-dipped cone exemplified moments of happiness and joy amidst the challenges.
